Notizie, news e novità

IMG 20161002 WA0013With the usual and excellent professionalism as well as the loving care that now binds us, Palazzo Loup on Loiano (BO) has again hosted, on October 1st and 2nd, the PKS Family Day 2016, the annual meeting of the Italian PKS families, an important opportunity of socialization and community which gathered, on this edition, eleven families.

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September 30, 2016. At the conclusion of the International Summer School and Workshop on BYOD registries for rare diseases, the Italian National Centre for Rare Diseases (Italian National Institute of Health) has formalized an agreement for the creation of two international registries, coordinated by PKS Kids Italy Onlus and the McCune-Albright Syndrome Association.



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