PKS Kids Italia Onlus is a charity and an association of social promotion, constituted on 23 October 2011 and enrolled in the Italian Official Register of Non-profits Association , prot. nr.15128, on 27 March 2012. It is part of the Friends of Telethon Associations, member of Eurordis and Uniamo.

First patient assocviation in Europe for the Pallister-Killian syndrome, it came from the desire of offering a support to families of children affectged by this rare genetic syndrome, protecting their rights, but especially promoting research and education and spreading awareness at all levels, including through the provision of information material, the organization of medical conferences and the establishment of scholarships.

There are about 300 diagnosed and known cases of PKS patients worldwide, but this number is highly underestimated.

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