• From research to daily life

    3rd European Workshop on PKS | Sassuolo (MO) , September 6-8 2019

  • Graduation Prize on Pallister-Killian Syndrome

    Published the call for competition for the third edition of the degree award dedicated to Simone Bucherini

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PKS Kids Italia Onlus is affiliated with

Telethon was created in Italy in 1990 to fund and promote scientific research on genetic diseases and rare diseases.


EURORDIS is a federation of patients' associations governed by patients active in the field of rare diseases.


Uniamo - Federazione Italiana Malattie Rare onlus was founded in Rome in July 1999 by the volition of twenty associations that deal with rare diseases.


the UNIQUE's mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder.


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